AAC Campaign--Get people talking about AAC and help more people get access to communication technology, training and ongoing support

We are continuing our efforts to bring awareness and understanding of the need for anyone who has limited communication to gain access to other ways to communicate, termed AAC (augmentative and alternative communication methods). These methods include other ways to speak, write and read such as electronic talking aids, computers, tablet computers, boards and books with pictures, words, and letters, Talking Mats, Communication Passports, eye-gaze, partner-assisted scanning, facilitated communication training, Rapid Prompting Method, gesture and sign language, and captioning. We encourage you to learn more and to teach others about AAC methods and how they can help with expression and with understanding what is being said.

Here are some ideas for learning more about AAC, increasing the visibility of AAC and people who use it, and helping people who use AAC to teach others about communication. Invite a person who uses AAC to make a speech or other presentation. Invite a person who uses AAC to demonstrate their communication method and to have a conversation so that others may learn better to interact with and listen to people who use various AAC systems. Host a film about AAC and invite people who use AAC to share their experiences with the audience. Connect people who are new to using AAC to communicate with mentors who are experienced users of AAC. Work with people who use AAC and their families and supporters to organize fundraising events to raise funds for AAC devices in your local area and to share information about AAC. Get local news media to interview people who use AAC and to print stories about AAC technology, the numbers of people who need AAC but may not have access, the lack of professionals trained in AAC, and related issues.

AAC Visibility and Awareness Project

Friday, August 9, 2013

Research Articles on Facilitated Communication focusing on authorship and other issues

There are numerous research articles which demonstrate the value of facilitated communication(FC) training methods or supported typing for at least some individuals.  In some of these, individuals who type with support have had success in demonstrating that they themselves were the authors of what was typed.  In other research, individuals who use FC training have demonstrated literacy and increased speech.  These articles and many personal reports of individuals and families are not always noted in research reviews or discussions of facilitated communication.  

For your easy reference, we have listed below articles which show the value of FC for some individuals.  In these, individuals have been successful in passing information that is unknown to their facilitator, i.e. have demonstrated authorship, or have demonstrated other gains due to FC training.  The first list includes a few qualitative studies and articles on literacy and other gains.  The second list has qualitative and quantitative research studies published in English, and the third list has research articles published in Spanish (with no translation available to date).  

Research Studies and Other Articles on Facilitated Communication (FC) and Related Issues, including qualitative studies that involve speech, literacy, and evidence. 

Note:  This is not an exhaustive list, but it provides some good examples.

Christine Ashby (2011) Whose "Voice" Is It Anyway?: Giving Voice And Qualitative Research Involving Individuals That Type To Communicate.  Disability Studies Quarterly, Vol. 31, No 4.

Rosemary Crossley and Chris Borthwick What constitutes evidence?  Why the debate about facilitated communication is important for ISAAC.  Paper written for the proceedings of the Seventh Biennial ISAAC Research Symposium, Odense, Denmark, August 2002. 

Christi Kasa-Hendrickson, Alicia A. Broderick, and Darlene Hanson (2009)
Sorting out Speech: Understanding Multiple Methods of Communication
for Persons with Autism and Other Developmental Disabilities.  The Journal of Developmental Processes, Vol. 4(2), pp. 116-133.   

Marjorie F. Olney (2001)  Evidence of literacy in individuals labeled with mental retardation.  Disability Studies Quarterly:  Spring 2001, Vol. 21, No. 2. 

Zachary Rossetti, Christine Ashby, Katrina Arndt, Marilyn Chadwick, Maho Kasahara, and John O'Brien (2008) “I Like Others to Not Try to Fix Me”: Agency, Independence, and Autism. Intellectual and Developmental Disabilities: October 2008, Vol. 46, No. 5, pp. 364-375.

Research Articles on Facilitated Communication focusing on authorship and showing evidence of authorship 

English Language Research Articles

Bernardi, L. & Tuzzi, A. (2011) Analyzing written communication in AAC contexts: a statistical perspective. Augmentative and Alternative Communication, 27 (3), 183-194.

Bernardi, L. & Tuzzi, A. (2011) Statistical Analysis of Textual Data from Corpora of Written Communication – New Results from an Italian Interdisciplinary Research Program (EASIEST). In Mohammad-Reza Mohammadi (Ed.), A Comprehensive Book on Autism Spectrum Disorders (pp. 413-434)  InTech. 

Cardinal, D. N., Hanson, D. & Wakeham, J.  (1996) Investigation of authorship in facilitated communication. Mental Retardation, 34, 231-242. 

Emerson, A., Grayson, A. & Griffiths, A. (2011) Can’t or won’t? Evidence relating to authorship in facilitated communication.  International Journal of Language & Communication Disorders, 15 (3), 1-16. 

Grayson, A., Emerson, A., Howard-Jones, P. & O’Neil, L. (2011) Hidden communicative competence: Case study evidence using eye-tracking and video analysis.  Autism, 15(3), 1-16. 

Janzen-Wilde, M., Ducham, L. & Felson, J. (1996) Successful use of facilitated communication with an oral child. Journal of Speech & Hearing Research, 38 (3), 658-676. 

Niemi, J. & Ka”rna”-Lin, E. (2002) Grammar and lexicon in facilitated communication: A linguistic authorship analysis in a Finnish case. Mental Retardation, 40 (5), 347-357. 

Ogletree, B. T. & Hamtil, A.  (1993) Facilitated Communication: A Naturalistic Validation Method.  Focus on Autistic Behavior, 8 (4), 1-10.  

Sheehan, C. M. & Matuozzi, R. T.  (1996) Investigation of the validity of facilitated communication through the disclosure of unknown information. Mental Retardation, 34, 94-107. 

Tuzzi, A. (2009) Grammar and lexicon in individuals with autism: A quantitative analysis of a large Italian corpus. Intellectual and Developmental Disabilities, 47 (5), 373-385. 

Weiss, M. J. S., Wagner, S. H. & Bauman, M. L. (1996) A validated case study of facilitated communication. Mental Retardation, 34, 220-230.